{"id":320879,"date":"2025-05-06T19:00:00","date_gmt":"2025-05-06T11:00:00","guid":{"rendered":"https:\/\/pingtungtimes.com.tw\/?p=320879"},"modified":"2025-05-06T19:00:00","modified_gmt":"2025-05-06T11:00:00","slug":"%e4%b8%96%e7%95%8c%e7%8b%bc%e7%98%a1%e8%81%af%e5%90%88%e6%9c%83%e5%85%a8%e7%90%83%e8%aa%bf%e6%9f%a5%ef%bc%9a%e8%bf%91%e5%8d%8a%e6%95%b8%e7%8b%bc%e7%98%a1%e6%82%a3%e8%80%85%e5%a0%b1%e7%a8%b1%e8%85%8e","status":"publish","type":"post","link":"https:\/\/pingtungtimes.com.tw\/?p=320879","title":{"rendered":"\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\u5168\u7403\u8abf\u67e5\uff1a\u8fd1\u534a\u6578\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f"},"content":{"rendered":"<div>\n<p class=\"prntac\"> <i>\u65b0\u6578\u64da\u7a81\u986f\uff0c\u5c31\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u6b64\u4e00\u56b4\u91cd\u72fc\u7621\u4f75\u767c\u75c7\uff0c\u52a0\u5f37\u76f8\u95dc\u6559\u80b2\u8207\u8a3a\u65b7\u5df2\u523b\u4e0d\u5bb9\u7de9<\/i> <\/p>\n<p> <span class=\"legendSpanClass\">\u83ef\u76db\u9813<\/span> <span class=\"legendSpanClass\">2025\u5e745\u67086\u65e5<\/span> \/\u7f8e\u901a\u793e\/ &#8212; \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (World Lupus Federation) \u7684\u4e00\u9805\u5168\u7403\u8abf\u67e5\u986f\u793a\uff0c47% \u7684\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f\uff0c\u53ef\u5f15\u81f4\u4e00\u7a2e\u56b4\u91cd\u4e14\u672a\u88ab\u5145\u5206\u8a8d\u8b58\u7684\u4f75\u767c\u75c7\uff0c\u5373\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u3002\u903e 43% \u53d7\u8a2a\u8005\u6307\u5c0d\u72fc\u7621\u6027\u814e\u708e\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\uff0c\u4f46\u540c\u6642\u6709 85% \u53d7\u8a2a\u8005\u5831\u7a31\u66fe\u51fa\u73fe\u4e00\u7a2e\u6216\u591a\u7a2e\u76f8\u95dc\u75c7\u72c0\u3002\u8abf\u67e5\u7d50\u679c\u7a81\u986f\u5728\u7406\u89e3\u3001\u8a3a\u65b7\u53ca\u6cbb\u7642\u72fc\u7621\u6027\u814e\u708e\u65b9\u9762\u5b58\u5728\u986f\u8457\u5dee\u8ddd\uff1b\u6b64\u75c7\u53ef\u5371\u53ca\u751f\u547d\uff0c\u4e14\u5c0d\u8655\u65bc\u4eba\u751f\u9ec3\u91d1\u6b72\u6708\u7684\u4eba\u58eb\u5f71\u97ff\u5c24\u751a\u3002<\/p>\n<div id=\"prni_dvprnejpg25d5left\" dir=\"ltr\" style=\"TEXT-ALIGN: center; WIDTH: 100%\">   <span>World Lupus Federation &#8211; www.worldlupusfederation.org\/<\/span>  <\/div>\n<p>\u72fc\u7621\u6027\u814e\u708e\u7684\u6210\u56e0\u662f\u514d\u75ab\u7cfb\u7d71\u932f\u8aa4\u653b\u64ca\u814e\u81df\uff0c\u5f15\u81f4\u708e\u75c7\uff0c\u82e5\u5ef6\u8aa4\u6cbb\u7642\uff0c\u53ef\u81f4\u9577\u671f\u5668\u5b98\u640d\u5bb3\uff0c\u5305\u62ec\u814e\u8870\u7aed\u3002\u5118\u7ba1\u5927\u90e8\u5206\u72fc\u7621\u6027\u814e\u708e\u75c5\u4f8b\u5728\u78ba\u8a3a\u72fc\u7621\u5f8c\u4e94\u5e74\u5167\u767c\u75c5\uff0c\u4f46\u8fd1\u4e94\u5206\u4e00\u5831\u7a31\u6709\u814e\u81df\u53d7\u7d2f\u75c7\u72c0\u7684\u53d7\u8a2a\u8005\uff0c\u5f9e\u672a\u7372\u91ab\u751f\u544a\u77e5\u60a3\u4e0a\u72fc\u7621\u6027\u814e\u708e\u3002<\/p>\n<p>\u5728\u65e9\u671f\u968e\u6bb5\uff0c\u72fc\u7621\u6027\u814e\u708e\u7684\u75c7\u72c0\u53ef\u80fd\u4e0d\u660e\u986f\u3002\u903e\u534a\u53d7\u8a2a\u8005\u6307\uff0c\u5c0d\u72fc\u7621\u6027\u814e\u708e\u7684\u5e38\u898b\u75c7\u72c0 (53%)\u3001\u61c9\u4f55\u6642\u7be9\u67e5 (54%)\uff0c\u4ee5\u53ca\u7be9\u67e5\u6240\u7528\u7684\u6aa2\u67e5\u65b9\u6cd5 (57%) \u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\u3002\u72fc\u7621\u6027\u814e\u708e\u7684\u75c7\u72c0\u5305\u62ec\u5c0e\u81f4\u9ad4\u91cd\u589e\u52a0\u7684\u9ad4\u6db2\u6eef\u7559\u3001\u816b\u8139\u3001\u6392\u5c3f\u6b21\u6578\u589e\u52a0\uff08\u5c24\u5176\u5728\u591c\u9593\uff09\u3001\u8840\u5c3f\u3001\u6ce1\u6cab\u5c3f\u548c\u9ad8\u8840\u58d3\u3002<\/p>\n<p>\u300c\u9019\u4e9b\u767c\u73fe\u63ed\u793a\u4e86\u4ee4\u4eba\u64d4\u6182\u7684\u73fe\u5be6\u2014\u2014\u8a31\u591a\u72fc\u7621\u60a3\u8005\u6b63\u9762\u5c0d\u4ed6\u5011\u4e0d\u5b8c\u5168\u7406\u89e3\u3001\u751a\u81f3\u61f5\u7136\u4e0d\u77e5\u7684\u814e\u81df\u4f75\u767c\u75c7\uff0c\u300d\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (Lupus Foundation of America) \u4e3b\u5e2d\u517c\u884c\u653f\u7e3d\u88c1 Louise Vetter 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href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=zh-hant&amp;o=4417518-1&amp;h=2695579235&amp;u=https%3A%2F%2Fc212.net%2Fc%2Flink%2F%3Ft%3D0%26l%3Den%26o%3D4417518-1%26h%3D2988677610%26u%3Dhttps%253A%252F%252Fworldlupusfederation.org%252Fwp-content%252Fuploads%252F2025%252F04%252FWLF-Visual-Summary-Report-Kidney-Involvement_04.2025-002.pdf%26a%3Dtopline%2Bvisual%2Bsummary&amp;a=%E4%B8%BB%E8%A6%81%E7%B5%90%E6%9E%9C%E8%A6%96%E8%A6%BA%E6%91%98%E8%A6%81\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">\u4e3b\u8981\u7d50\u679c\u8996\u89ba\u6458\u8981<\/a>\u548c<a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=zh-hant&amp;o=4417518-1&amp;h=4030504839&amp;u=https%3A%2F%2Fc212.net%2Fc%2Flink%2F%3Ft%3D0%26l%3Den%26o%3D4417518-1%26h%3D1059701718%26u%3Dhttps%253A%252F%252Flupus.pdx1.qualtrics.com%252Freports%252Fpublic%252FbHVwdXMtNjgwMjZiZjhkZGRmMzcwMDA4OGQyOGFhLVVSXzl1eGNXeW5FMVhDYjVCaw%253D%253D%26a%3Ddetailed%2Bsurvey%2Bresults&amp;a=%E8%A9%B3%E7%B4%B0%E8%AA%BF%E6%9F%A5%E7%B5%90%E6%9E%9C\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">\u8a73\u7d30\u8abf\u67e5\u7d50\u679c<\/a>\u3002<\/p>\n<p> <b>\u95dc\u65bc\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff1a<\/b> <\/p>\n<p> <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=zh-hant&amp;o=4417518-1&amp;h=3767929441&amp;u=https%3A%2F%2Fc212.net%2Fc%2Flink%2F%3Ft%3D0%26l%3Den%26o%3D4417518-1%26h%3D3764469651%26u%3Dhttps%253A%252F%252Fworldlupusfederation.org%252F%26a%3DWorld%2BLupus%2BFederation&amp;a=%E4%B8%96%E7%95%8C%E7%8B%BC%E7%98%A1%E8%81%AF%E5%90%88%E6%9C%83\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703<\/a> (WLF) \u7531\u903e 200 \u500b<a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=zh-hant&amp;o=4417518-1&amp;h=2054731508&amp;u=https%3A%2F%2Fc212.net%2Fc%2Flink%2F%3Ft%3D0%26l%3Den%26o%3D4417518-1%26h%3D2291807663%26u%3Dhttps%253A%252F%252Fwww.lupus.org%252Fresources%252Fwhat-is-lupus%26a%3Dlupus&amp;a=%E7%8B%BC%E7%98%A1\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">\u72fc\u7621<\/a>\u60a3\u8005\u7d44\u7e54\u7d44\u6210\uff0c\u662f\u4e00\u500b\u81f4\u529b\u806f\u5408\u6539\u5584\u5168\u7403\u7d04 500 \u842c\u540d\u72fc\u7621\u60a3\u8005\u751f\u6d3b\u8cea\u7d20\u7684\u806f\u76df\u3002\u900f\u904e\u6210\u54e1\u9593\u7684\u5354\u4f5c\uff0c\u8a72\u806f\u5408\u6703\u81f4\u529b\u63a8\u52d5\u5168\u7403\u884c\u52d5\uff0c\u4ee5\u52a0\u6df1\u516c\u773e\u5c0d\u72fc\u7621\u7684\u8a8d\u8b58\u8207\u7406\u89e3\uff0c\u70ba\u60a3\u8005\u63d0\u4f9b\u6559\u80b2\u53ca\u670d\u52d9\uff0c\u4e26\u70ba\u4ed6\u5011\u767c\u8072\u5021\u8b70\u3002<a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=zh-hant&amp;o=4417518-1&amp;h=3576258851&amp;u=https%3A%2F%2Fc212.net%2Fc%2Flink%2F%3Ft%3D0%26l%3Den%26o%3D4417518-1%26h%3D1920858726%26u%3Dhttps%253A%252F%252Fwww.lupus.org%252Fabout-us%26a%3DLupus%2BFoundation%2Bof%2BAmerica&amp;a=%E7%BE%8E%E5%9C%8B%E7%8B%BC%E7%98%A1%E5%9F%BA%E9%87%91%E6%9C%83\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703<\/a> (LFA) \u65bc 2015 \u5e74\u8207\u6b50\u6d32\u72fc\u7621\u7d44\u7e54 (Lupus Europe) \u5171\u540c\u5275\u7acb\u4e86\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff0c\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703\u76ee\u524d\u64d4\u4efb\u8a72\u806f\u5408\u6703\u7684\u79d8\u66f8\u8655\u3002<\/p>\n<p> <b>\u5a92\u9ad4\u806f\u7d61<\/b> <\/p>\n<p>Mike Donnelly<br \/>\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703<br \/><a href=\"mailto:donnelly@lupus.org\" target=\"_blank\" rel=\"nofollow noopener\" style=\"color: #0000FF\">donnelly@lupus.org<\/a><\/p>\n<\/p>\n<p>\u00a0<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>\u65b0\u6578\u64da\u7a81\u986f\uff0c\u5c31\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621&#8230;<\/p>\n","protected":false},"author":16,"featured_media":320880,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"fifu_image_url":"","fifu_image_alt":"","footnotes":""},"categories":[40567],"tags":[],"class_list":["post-320879","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-40567"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\u5168\u7403\u8abf\u67e5\uff1a\u8fd1\u534a\u6578\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f - \u5c4f\u6771\u6642\u5831\u96fb\u5b50\u5831<\/title>\n<meta name=\"description\" content=\"\u65b0\u6578\u64da\u7a81\u986f\uff0c\u5c31\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u6b64\u4e00\u56b4\u91cd\u72fc\u7621\u4f75\u767c\u75c7\uff0c\u52a0\u5f37\u76f8\u95dc\u6559\u80b2\u8207\u8a3a\u65b7\u5df2\u523b\u4e0d\u5bb9\u7de9  \u83ef\u76db\u9813 2025\u5e745\u67086\u65e5 \/\u7f8e\u901a\u793e\/ -- \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (World Lupus Federation) \u7684\u4e00\u9805\u5168\u7403\u8abf\u67e5\u986f\u793a\uff0c47% \u7684\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f\uff0c\u53ef\u5f15\u81f4\u4e00\u7a2e\u56b4\u91cd\u4e14\u672a\u88ab\u5145\u5206\u8a8d\u8b58\u7684\u4f75\u767c\u75c7\uff0c\u5373\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u3002\u903e 43% \u53d7\u8a2a\u8005\u6307\u5c0d\u72fc\u7621\u6027\u814e\u708e\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\uff0c\u4f46\u540c\u6642\u6709 85% \u53d7\u8a2a\u8005\u5831\u7a31\u66fe\u51fa\u73fe\u4e00\u7a2e\u6216\u591a\u7a2e\u76f8\u95dc\u75c7\u72c0\u3002\u8abf\u67e5\u7d50\u679c\u7a81\u986f\u5728\u7406\u89e3\u3001\u8a3a\u65b7\u53ca\u6cbb\u7642\u72fc\u7621\u6027\u814e\u708e\u65b9\u9762\u5b58\u5728\u986f\u8457\u5dee\u8ddd\uff1b\u6b64\u75c7\u53ef\u5371\u53ca\u751f\u547d\uff0c\u4e14\u5c0d\u8655\u65bc\u4eba\u751f\u9ec3\u91d1\u6b72\u6708\u7684\u4eba\u58eb\u5f71\u97ff\u5c24\u751a\u3002      World Lupus Federation - www.worldlupusfederation.org\/  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\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\u3002\u72fc\u7621\u6027\u814e\u708e\u7684\u75c7\u72c0\u5305\u62ec\u5c0e\u81f4\u9ad4\u91cd\u589e\u52a0\u7684\u9ad4\u6db2\u6eef\u7559\u3001\u816b\u8139\u3001\u6392\u5c3f\u6b21\u6578\u589e\u52a0\uff08\u5c24\u5176\u5728\u591c\u9593\uff09\u3001\u8840\u5c3f\u3001\u6ce1\u6cab\u5c3f\u548c\u9ad8\u8840\u58d3\u3002 \u300c\u9019\u4e9b\u767c\u73fe\u63ed\u793a\u4e86\u4ee4\u4eba\u64d4\u6182\u7684\u73fe\u5be6\u2014\u2014\u8a31\u591a\u72fc\u7621\u60a3\u8005\u6b63\u9762\u5c0d\u4ed6\u5011\u4e0d\u5b8c\u5168\u7406\u89e3\u3001\u751a\u81f3\u61f5\u7136\u4e0d\u77e5\u7684\u814e\u81df\u4f75\u767c\u75c7\uff0c\u300d\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (Lupus Foundation of America) \u4e3b\u5e2d\u517c\u884c\u653f\u7e3d\u88c1 Louise Vetter 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\u6b32\u4e86\u89e3\u66f4\u591a\u8abf\u67e5\u8a73\u60c5\uff0c\u8acb\u67e5\u95b1\u4e3b\u8981\u7d50\u679c\u8996\u89ba\u6458\u8981\u548c\u8a73\u7d30\u8abf\u67e5\u7d50\u679c\u3002  \u95dc\u65bc\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff1a  \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (WLF) \u7531\u903e 200 \u500b\u72fc\u7621\u60a3\u8005\u7d44\u7e54\u7d44\u6210\uff0c\u662f\u4e00\u500b\u81f4\u529b\u806f\u5408\u6539\u5584\u5168\u7403\u7d04 500 \u842c\u540d\u72fc\u7621\u60a3\u8005\u751f\u6d3b\u8cea\u7d20\u7684\u806f\u76df\u3002\u900f\u904e\u6210\u54e1\u9593\u7684\u5354\u4f5c\uff0c\u8a72\u806f\u5408\u6703\u81f4\u529b\u63a8\u52d5\u5168\u7403\u884c\u52d5\uff0c\u4ee5\u52a0\u6df1\u516c\u773e\u5c0d\u72fc\u7621\u7684\u8a8d\u8b58\u8207\u7406\u89e3\uff0c\u70ba\u60a3\u8005\u63d0\u4f9b\u6559\u80b2\u53ca\u670d\u52d9\uff0c\u4e26\u70ba\u4ed6\u5011\u767c\u8072\u5021\u8b70\u3002\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (LFA) \u65bc 2015 \u5e74\u8207\u6b50\u6d32\u72fc\u7621\u7d44\u7e54 (Lupus Europe) \u5171\u540c\u5275\u7acb\u4e86\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff0c\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703\u76ee\u524d\u64d4\u4efb\u8a72\u806f\u5408\u6703\u7684\u79d8\u66f8\u8655\u3002  \u5a92\u9ad4\u806f\u7d61  Mike Donnelly\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703donnelly@lupus.org    \u00a0\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/pingtungtimes.com.tw\/?p=320879\" \/>\n<meta property=\"og:locale\" content=\"zh_TW\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\u5168\u7403\u8abf\u67e5\uff1a\u8fd1\u534a\u6578\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f - \u5c4f\u6771\u6642\u5831\u96fb\u5b50\u5831\" \/>\n<meta property=\"og:description\" content=\"\u65b0\u6578\u64da\u7a81\u986f\uff0c\u5c31\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u6b64\u4e00\u56b4\u91cd\u72fc\u7621\u4f75\u767c\u75c7\uff0c\u52a0\u5f37\u76f8\u95dc\u6559\u80b2\u8207\u8a3a\u65b7\u5df2\u523b\u4e0d\u5bb9\u7de9  \u83ef\u76db\u9813 2025\u5e745\u67086\u65e5 \/\u7f8e\u901a\u793e\/ -- \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (World Lupus Federation) \u7684\u4e00\u9805\u5168\u7403\u8abf\u67e5\u986f\u793a\uff0c47% \u7684\u72fc\u7621\u60a3\u8005\u5831\u7a31\u814e\u81df\u53d7\u7d2f\uff0c\u53ef\u5f15\u81f4\u4e00\u7a2e\u56b4\u91cd\u4e14\u672a\u88ab\u5145\u5206\u8a8d\u8b58\u7684\u4f75\u767c\u75c7\uff0c\u5373\u72fc\u7621\u6027\u814e\u708e\uff08\u72fc\u7621\u76f8\u95dc\u814e\u81df\u75be\u75c5\uff09\u3002\u903e 43% \u53d7\u8a2a\u8005\u6307\u5c0d\u72fc\u7621\u6027\u814e\u708e\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\uff0c\u4f46\u540c\u6642\u6709 85% \u53d7\u8a2a\u8005\u5831\u7a31\u66fe\u51fa\u73fe\u4e00\u7a2e\u6216\u591a\u7a2e\u76f8\u95dc\u75c7\u72c0\u3002\u8abf\u67e5\u7d50\u679c\u7a81\u986f\u5728\u7406\u89e3\u3001\u8a3a\u65b7\u53ca\u6cbb\u7642\u72fc\u7621\u6027\u814e\u708e\u65b9\u9762\u5b58\u5728\u986f\u8457\u5dee\u8ddd\uff1b\u6b64\u75c7\u53ef\u5371\u53ca\u751f\u547d\uff0c\u4e14\u5c0d\u8655\u65bc\u4eba\u751f\u9ec3\u91d1\u6b72\u6708\u7684\u4eba\u58eb\u5f71\u97ff\u5c24\u751a\u3002      World Lupus Federation - www.worldlupusfederation.org\/  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\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\u3002\u72fc\u7621\u6027\u814e\u708e\u7684\u75c7\u72c0\u5305\u62ec\u5c0e\u81f4\u9ad4\u91cd\u589e\u52a0\u7684\u9ad4\u6db2\u6eef\u7559\u3001\u816b\u8139\u3001\u6392\u5c3f\u6b21\u6578\u589e\u52a0\uff08\u5c24\u5176\u5728\u591c\u9593\uff09\u3001\u8840\u5c3f\u3001\u6ce1\u6cab\u5c3f\u548c\u9ad8\u8840\u58d3\u3002 \u300c\u9019\u4e9b\u767c\u73fe\u63ed\u793a\u4e86\u4ee4\u4eba\u64d4\u6182\u7684\u73fe\u5be6\u2014\u2014\u8a31\u591a\u72fc\u7621\u60a3\u8005\u6b63\u9762\u5c0d\u4ed6\u5011\u4e0d\u5b8c\u5168\u7406\u89e3\u3001\u751a\u81f3\u61f5\u7136\u4e0d\u77e5\u7684\u814e\u81df\u4f75\u767c\u75c7\uff0c\u300d\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (Lupus Foundation of America) \u4e3b\u5e2d\u517c\u884c\u653f\u7e3d\u88c1 Louise Vetter \u8868\u793a\uff0c\u300c\u53ca\u65e9\u8a3a\u65b7\u548c\u63a5\u53d7\u9069\u7576\u6cbb\u7642\uff0c\u5c0d\u4fdd\u8b77\u814e\u81df\u5065\u5eb7\u53ca\u9810\u9632\u9577\u671f\u640d\u5bb3\u81f3\u95dc\u91cd\u8981\u3002\u6211\u5011\u5fc5\u9808\u7acb\u5373\u884c\u52d5\uff0c\u6d88\u9664\u8a8d\u77e5\u5dee\u8ddd\uff0c\u52a0\u5f37\u5c0d\u5e38\u898b\u75c7\u72c0\u53ca\u59a5\u5584\u814e\u81df\u76e3\u6e2c\u7684\u6559\u80b2\uff0c\u4e26\u63d0\u5347\u5168\u7403\u8b77\u7406\u6c34\u5e73\u3002\u85c9\u8457 5 \u6708 10 \u65e5\u4e16\u754c\u72fc\u7621\u65e5\uff0c\u6b63\u597d\u5718\u7d50\u5404\u754c\uff0c\u70ba\u60a3\u8005\u767c\u8072\uff0c\u722d\u53d6\u66f4\u4f73\u6cbb\u7642\u6210\u6548\u3002\u300d \u5176\u4ed6\u4e3b\u8981\u767c\u73fe\u5305\u62ec\uff1a   74% \u8072\u7a31\u814e\u81df\u672a\u53d7\u5f71\u97ff\u7684\u53d7\u8a2a\u8005\uff0c\u5831\u7a31\u51fa\u73fe\u4e00\u7a2e\u6216\u591a\u7a2e\u72fc\u7621\u6027\u814e\u708e\u5e38\u898b\u75c7\u72c0\uff0c\u5e73\u5747\u6709 1.5 \u7a2e\u3002  \u6bcf 10 \u540d\u72fc\u7621\u6027\u814e\u708e\u60a3\u8005\u4e2d\uff0c\u6709 3 \u4eba\u8868\u793a\u5c0d\u6b64\u75c7\u8a8d\u8b58\u4e0d\u8db3\u6216\u5168\u4e0d\u8a8d\u8b58\u3002  59%\u00a0\u72fc\u7621\u6027\u814e\u708e\u60a3\u8005\u5831\u7a31\u66fe\u56e0\u6b64\u75c7\u4f4f\u9662\u3002  \u903e\u4e09\u5206\u4e00 (36%) \u78ba\u8a3a\u72fc\u7621\u6027\u814e\u708e\u7684\u60a3\u8005\uff0c\u5f9e\u672a\u63a5\u53d7\u814e\u81df\u6d3b\u6aa2\u2014\u2014\u6b64\u4e43\u8a3a\u65b7\u7684\u9ec3\u91d1\u6a19\u6e96\u3002  \u5728\u672a\u63a5\u53d7\u814e\u81df\u6d3b\u6aa2\u7684\u72fc\u7621\u6027\u814e\u708e\u60a3\u8005\u4e2d\uff0c54% \u8868\u793a\u5c0d\u6b64\u7a0b\u5e8f\u611f\u7336\u8c6b\u3002  \u4f86\u81ea 84 \u500b\u570b\u5bb6\u3001\u903e 3,260 \u540d\u72fc\u7621\u60a3\u8005\u65bc 2025 \u5e74 3 \u6708\u53c3\u8207\u4e86\u9019\u9805\u5305\u542b 25 \u689d\u554f\u984c\u7684\u8abf\u67e5\u3002\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\u65bc 5 \u6708 10 \u65e5\u4e16\u754c\u72fc\u7621\u65e5\u81e8\u8fd1\u4e4b\u969b\u767c\u5e03\u9019\u4e9b\u8abf\u67e5\u7d50\u679c\uff0c\u85c9\u6b64\u5f37\u8abf\u63d0\u5347\u516c\u773e\u5c0d\u72fc\u7621\u53ca\u72fc\u7621\u6027\u814e\u708e\u7684\u8a8d\u77e5\u3001\u52a0\u5f37\u6559\u80b2\u3001\u6539\u5584\u7be9\u67e5\u53ca\u78ba\u4fdd\u53ca\u6642\u6cbb\u7642\u7684\u8feb\u5207\u6027\u3002 \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\u547c\u7c72\u5168\u7403\u7684\u500b\u4eba\u3001\u7d44\u7e54\u53ca\u91ab\u8b77\u4eba\u54e1\u5229\u7528\u9019\u4e9b\u6578\u64da\uff0c\u7528\u65bc\u76f8\u95dc\u7684\u72fc\u7621\u6559\u80b2\u53ca\u8a8d\u77e5\u63a8\u5ee3\u5de5\u4f5c\uff0c\u5206\u4eab\u5305\u62ec\u672c\u6b21\u8abf\u67e5\u7d50\u679c\u5728\u5167\u7684\u72fc\u7621\u8cc7\u8a0a\uff0c\u4e26\u5584\u7528\u5b98\u65b9\u7684\u4e16\u754c\u72fc\u7621\u65e5\u5de5\u5177\u5305\u63d0\u5347\u516c\u773e\u8a8d\u77e5\u3002 \u6b32\u4e86\u89e3\u66f4\u591a\u8abf\u67e5\u8a73\u60c5\uff0c\u8acb\u67e5\u95b1\u4e3b\u8981\u7d50\u679c\u8996\u89ba\u6458\u8981\u548c\u8a73\u7d30\u8abf\u67e5\u7d50\u679c\u3002  \u95dc\u65bc\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff1a  \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (WLF) \u7531\u903e 200 \u500b\u72fc\u7621\u60a3\u8005\u7d44\u7e54\u7d44\u6210\uff0c\u662f\u4e00\u500b\u81f4\u529b\u806f\u5408\u6539\u5584\u5168\u7403\u7d04 500 \u842c\u540d\u72fc\u7621\u60a3\u8005\u751f\u6d3b\u8cea\u7d20\u7684\u806f\u76df\u3002\u900f\u904e\u6210\u54e1\u9593\u7684\u5354\u4f5c\uff0c\u8a72\u806f\u5408\u6703\u81f4\u529b\u63a8\u52d5\u5168\u7403\u884c\u52d5\uff0c\u4ee5\u52a0\u6df1\u516c\u773e\u5c0d\u72fc\u7621\u7684\u8a8d\u8b58\u8207\u7406\u89e3\uff0c\u70ba\u60a3\u8005\u63d0\u4f9b\u6559\u80b2\u53ca\u670d\u52d9\uff0c\u4e26\u70ba\u4ed6\u5011\u767c\u8072\u5021\u8b70\u3002\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (LFA) \u65bc 2015 \u5e74\u8207\u6b50\u6d32\u72fc\u7621\u7d44\u7e54 (Lupus Europe) \u5171\u540c\u5275\u7acb\u4e86\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff0c\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703\u76ee\u524d\u64d4\u4efb\u8a72\u806f\u5408\u6703\u7684\u79d8\u66f8\u8655\u3002  \u5a92\u9ad4\u806f\u7d61  Mike Donnelly\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703donnelly@lupus.org    \u00a0\" \/>\n<meta property=\"og:url\" content=\"https:\/\/pingtungtimes.com.tw\/?p=320879\" \/>\n<meta property=\"og:site_name\" content=\"\u5c4f\u6771\u6642\u5831\u96fb\u5b50\u5831\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/pingtungnews\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-06T11:00:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/pingtungtimes.com.tw\/wp-content\/uploads\/World_Lupus_Federation_Logo_v2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"342\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"\u7f8e\u901a\u793e\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u4f5c\u8005:\" \/>\n\t<meta name=\"twitter:data1\" content=\"\u7f8e\u901a\u793e\" \/>\n<script type=\"application\/ld+json\" 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\u6b32\u4e86\u89e3\u66f4\u591a\u8abf\u67e5\u8a73\u60c5\uff0c\u8acb\u67e5\u95b1\u4e3b\u8981\u7d50\u679c\u8996\u89ba\u6458\u8981\u548c\u8a73\u7d30\u8abf\u67e5\u7d50\u679c\u3002  \u95dc\u65bc\u4e16\u754c\u72fc\u7621\u806f\u5408\u6703\uff1a  \u4e16\u754c\u72fc\u7621\u806f\u5408\u6703 (WLF) \u7531\u903e 200 \u500b\u72fc\u7621\u60a3\u8005\u7d44\u7e54\u7d44\u6210\uff0c\u662f\u4e00\u500b\u81f4\u529b\u806f\u5408\u6539\u5584\u5168\u7403\u7d04 500 \u842c\u540d\u72fc\u7621\u60a3\u8005\u751f\u6d3b\u8cea\u7d20\u7684\u806f\u76df\u3002\u900f\u904e\u6210\u54e1\u9593\u7684\u5354\u4f5c\uff0c\u8a72\u806f\u5408\u6703\u81f4\u529b\u63a8\u52d5\u5168\u7403\u884c\u52d5\uff0c\u4ee5\u52a0\u6df1\u516c\u773e\u5c0d\u72fc\u7621\u7684\u8a8d\u8b58\u8207\u7406\u89e3\uff0c\u70ba\u60a3\u8005\u63d0\u4f9b\u6559\u80b2\u53ca\u670d\u52d9\uff0c\u4e26\u70ba\u4ed6\u5011\u767c\u8072\u5021\u8b70\u3002\u7f8e\u570b\u72fc\u7621\u57fa\u91d1\u6703 (LFA) \u65bc 2015 \u5e74\u8207\u6b50\u6d32\u72fc\u7621\u7d44\u7e54 (Lupus Europe) 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